Publications
Publications related to the Down Syndrome Research Program - 1977 - 2021
2021
Faragher, R., Chen, M., Miranda, L., Poon, K., Rumiati, Chang, F.-R., & Chen, H. (2021). Inclusive education in Asia: Insights from some country case studies. Journal of Policy and Practice in Intellectual Disabilities, 18(1), 23-35. https://doi.org/10.1111/jppi.12369
Lloyd, J., Moni, K., Cuskelly, M., & Jobling, A. (2021). National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability? Disability & Society, 1-20.
2020
Cuskelly, M. (2020). Siblings' influence on the development of individuals with Down syndrome. In J.A. Burack, J.O. Edgin, L. Abbeduto & J. Busciglio (Eds.), The Oxford Handbook of Down Syndrome and Development. Oxford University Press.
Cuskelly, M., Moni, K., McMahon, M., Jobling, A., Lloyd, J., & Leggatt-Cook, C. (2020). Futures of adults with intellectual disability: Staff expectations. Journal of Intellectual & Developmental Disability, 1-10. https://doi.org/10.3109/13668250.2020.1814490
Faragher, R., Robertson, P., & Bird, G. (2020). International guidelines for the education of learners with Down syndrome. Down Syndrome International (DSi). https://www.ds-int.org/Handlers/Download.ashx?IDMF=7a4a9546-287d-49c1-8573-888319d7310f
Faragher, R., & Clarke, B. (2020). Inclusive practices in the teaching of mathematics: Some findings from research including children with Down syndrome. Mathematics Education Research Journal, 32(1), 121-146. https://doi.org/10.1007/s13394-019-00294-x
Lloyd, J., Moni, K., Cuskelly, M., & Jobling, A. (2020). Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: Parents’ perspectives. Journal of Intellectual & Developmental Disability, 1-10. https://doi.org/10.3109/13668250.2020.1843764
McMahon, M., Moni, K., Cuskelly, M., Lloyd, J., & Jobling, A. (2020). Aspirations held by young adults with intellectual disabilities and their mothers. Australian Journal of Career Development, 29(2), 107-116. https://doi.org/10.1177%2F1038416220916813
2019
Cuskelly, M., & Faragher, R. (2019). Developmental dyscalculia and Down syndrome: Indicative evidence. International Journal of Disability, Development & Education, 66(2), 151-161. doi:10.1080/1034912X.2019.1569209
Faragher, R., & Gil Clemente, E. (2019). Emerging trends in mathematics education for people with Down syndrome: Current research and future directions. International Journal of Disability, Development & Education, 66(2), 111-118. doi:10.1080/1034912X.2019.1579891
Faragher, R. (2019). The new 'functional mathematics' for learners with Down syndrome: Numeracy for a digital world. International Journal of Disability, Development & Education, 66(2), 206-217. doi:10.1080/1034912X.2019.1571172
Faragher, R. (2019). Research in the field of Down syndrome: Impact, continuing need and possible risks from the new eugenics. Journal of Policy and Practice in Intellectual Disability, 16(2) 130-133. doi:10.1111/jppi.12305
Faragher, R. (2019). La educacion de una persona con sindrome de Down. In M. I. Guerrero & R. I. Brown (Eds.), Vivir con Sindrome de Down (pp. 95-116). Mexico City: Guerrero & Brown. [Spanish]
Faragher, R.M., Beswick, K., Cuskelly, M., & Nankervis, K. (2019). The affective impact of inclusive mathematics for learners with Down syndrome: “I just love it!”. In G. Hine, S. Blackley, & A. Cooke (Eds.). Mathematics Education Research: Impacting Practice (Proceedings of the 42nd annual conference of the Mathematics Education Research Group of Australasia) (pp. 260-267). Perth: MERGA
Faragher, R., & Taggart, L. (2019). Editorial. Journal of Policy and Practice in Intellectual Disabilities, 16(2), 96-98. https://doi.org/10.1111/jppi.12302
Lloyd, J., Jobling, M.A., White, E., Labosse, M., Moni, K., Cuskelly, M., & McMahon, M. (2019). The experiences of two young adults with intellectual disability: participating in a research reference committee. British Journal of Learning Disabilities, 47, 35-41. doi: 10.1111/bld.1225
Lloyd, J., Moni, K., Cuskelly, M., & Jobling, A. (2019). Engaging with National Disability Insurance Scheme Planning: perspectives of parents of an adult with intellectual disability. Journal of Intellectual & Developmental Disability, 45(3), 254-263. https://doi.org/10.3109/13668250.2019.1654275
Mann, G., Hodge, N., Runswick-Cole, K., Gilmore, L., Mavropoulou, S., & Fleming, K. (2019). Developing productive partnerships with parents and carers. In L. Graham (Ed.). Inclusive education in the 21st century: Theory, policy & practice. Sydney: Allen & Unwin. ISBN: 9781760527099
2018
Brown, R. I., & Faragher, R. (2018). Quality of life in the wider world. Challenges from the field of intellectual and developmental disabilities. In R. I. Brown & R. Faragher (Eds.), Quality of life and intellectual disability. Knowledge application to other social and educational challenges. (Revised ed., pp. 3-18). Nova.
Faragher, R., Broadbent, C., Brown, R. I., & Burgess, J. (2018). Applying the principles of quality of life to education. In R. I. Brown & R. Faragher (Eds.), Quality of life and intellectual disability. Knowledge application to other social and educational challenges. (Revised ed., pp. 37-54). Nova.
Fernandez, Y., Ziviani, J., Cuskelly, M., Colquhoun, R., & Jones, F. (2018). Leisure participation, health and wellbeing: Experiences of children with developmental difficulties and their families. Leisure Sciences, 40, 110-130. doi: 10.1080/01490400.2017.1408509
Su, H., Cuskelly, M., Gilmore, L., & Sullivan, K. (2018). Perceptions of support in Chinese mothers of a child with intellectual disability. Journal of Developmental and Physical Disabilities, 30, 509-525. doi: 10.1007/s10882-018-95998
Mann, G., Cuskelly, M., & Moni, K.B. (2018). An investigation of parents’ decisions to transfer their children from regular to special schools. Journal of Policy and Practice in Intellectual Disabilities, 15, 183-192. doi: 10.1111/jppi.12238
Mann, G. (2018). Inclusive education: When research evidence is not enough. Voice, 6(1), 6-9.
2017
Cuskelly, M., Faragher, R., & Jobling, A. (2017). Indicative evidence that developmental dyscalculia may be part of the Down syndrome behavioural phenotype. Poster presented at the Society for the Study of Behavioural Phenotypes Conference, Leiden.
Faragher, R. (2017). Hypothesis of developmental dyscalculia and Down syndrome: Implications for mathematics education. In A. Downton, S. Livy, & J. Hall (Eds.), 40 years on: We are still learning! Proceedings of the 40th Annual Conference of the Mathematics Education Research Group of Australasia (pp. 245-252). Melbourne: MERGA.
Faragher, R. (2017). Functional mathematics in a digital age: What do we really need to teach? Voice (March), 6-7.
Faragher, R. (2017). 'Functional' mathematics in an electronic age: Implications for classroom practice. In V. Barker, T. Spencer, & K. Manuel (Eds.), Capital Maths. Proceedings of the 26th Biennial Conference of the Australian Association of Mathematics Teachers Inc. (pp. 8-17). Canberra, ACT: AAMT.
Faragher, R., Stratford, M., & Clarke, B. (2017). Teaching children with Down syndrome in inclusive primary mathematics classrooms. Australian Primary Mathematics Classroom, 22(4), 13.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_gale_ofa521874913&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Faragher, R., & Van Ommen, M. (2017). Conceptualising educational quality of life to understand the school experiences of students with intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 14(1), 39-50. doi:10.1111/jppi.12213
Gilmore, L., & Cuskelly, M. (2017). Associations of Child and Adolescent Mastery Motivation and Self-Regulation with Adult Outcomes: A longitudinal study of individuals with Down syndrome. American Journal on Intellectual and Developmental Disabilities, 122(3), 235-246.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_medline28452583&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Riany, Y., Meredith, P., & Cuskelly, M. (2017). Understanding the influence of traditional cultural values on Indonesian parenting. Marriage & Family Review, 53(3), 207-226.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_tayfranc10.1080/01494929.2016.1157561&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Su, H., Gilmore, L., Cuskelly, M., & Sullivan, K. (2017). Authoritative Parenting of Chinese Mothers of Children with and without Intellectual Disability. Journal of Child and Family Studies, 26(4), 1173-1183.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_scopus2-s2.0-85000893468&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Wooderson, J. R., Cuskelly, M., & Meyer, K. A. (2017). Evaluating the performance improvement preferences of disability service managers: an exploratory study using gilbert's behavior engineering model. Journal of Applied Research in Intellectual Disabilities, 30(4), 661-671.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_ericEJ1143271&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
2016
Cuskelly, M., Povey, J., & Jobling, A. (2016). Trajectories of development of receptive vocabulary in individuals with Down syndrome. Journal of Policy and Practice in Intellectual Disabilities, 13(2), 111-119.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wj10.1111/jppi.12151&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Cuskelly, M. (2016). Contributors to adult sibling relationships and intention to care of siblings of individuals with Down syndrome. American Journal on Intellectual and Developmental Disabilities, 121 (3), 204-218.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_ericEJ1100726&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Faragher, R., & Clarke, B. (2016). Teacher identified professional learning needs to effectively include a child with Down syndrome in primary mathematics. Journal of Policy and Practice in Intellectual Disabilities, 13(2), 132-141. doi:10.1111/jppi.12159
Faragher, R., Hill, J., & Clarke, B. (2016). Inclusive practices in mathematics education. In K. Makar, S. Dole, J. Visnovka, M. Goos, A. Bennison, & K. Fry (Eds.), Research in mathematics education in Australasia: 2012-2015 (pp. 119-141). Singapore: Springer.
Gilmore, L., & Cuskelly, M. (2016). Childhood and adolescent predictors of adult functioning in a sample with Down syndrome. Journal of Intellectual Disability Research, 60(7-8), 671.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000242&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Riany, Y., Cuskelly, M., & Meredith, P. (2017). Parenting Style and Parent–Child Relationship: A Comparative Study of Indonesian Parents of Children with and without Autism Spectrum Disorder (ASD). Journal of Child and Family Studies, 26(12), 3559-3571.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_springer_jour10.1007/s10826-017-0840-3&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Cuskelly, M., Gilmore, L., Glenn, S., & Jobling, A. (2016). Delay of Gratification: A Comparison Study of Children with Down Syndrome, Moderate Intellectual Disability and Typical Development. Journal of Intellectual Disability Research, 60(9), 865-873.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_ericEJ1110841&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Cuskelly, M., Povey, J., & Jobling, A. (2016). Receptive vocabulary development in individuals with Down syndrome. Journal of Intellectual Disability Research, 60(7-8), 654.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000157&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Gilmore, L., Ryan, B., Cuskelly, M., & Gavidia‐Payne, S. (2016). Understanding maternal support for autonomy in young children with Down syndrome. Journal of Policy and Practice in Intellectual Disabilities, 13(2), 92-101.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wj10.1111/jppi.12163&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Mann, G., Cuskelly, M., & Moni, K. (2016). An investigation of parents' decision to transfer their children from regular to special schools. Journal of Intellectual Disability Research, 60(7-8), 700.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000389&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Mann, G., Moni, K., & Cuskelly, M. (2016). Parents' views of an optimal school life: using Social Role Valorization to explore differences in parental perspectives when children have intellectual disability. International Journal of Qualitative Studies in Education (QSE), 29(7), 964-979. doi:10.1080/09518398.2016.1174893
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_ericEJ1102120&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Lloyd, J., Cuskelly, M., Moni, K., McMahon, A., & Jobling, J. (2016). Parental aspirations regarding employment of young adults with intellectual disabilities. Journal of Intellectual Disability Research, 60(7-8), 697.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000375&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Moni, K., Cuskelly, M., McMahon, A., Jobling, J., & Lloyd, K. (2016). Family perceptions of the roles of service organisations in the lives of young people with intellectual disabilities. Journal of Intellectual Disability Research, 60(7-8), 710.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000438&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Moni, K., De Paor, G., & Jobling, A. (2016). Developing receptive language abilities of adults with Down syndrome: An Irish case study. Journal of Intellectual Disability Research, 60(7-8), 710.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000439&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Moni, K., Jobling, A., & Lloyd, J. (2016). Developing language abilities of young adults with intellectual disabilities through an adult literacy program. Journal of Intellectual Disability Research, 60(7-8), 710.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_wos000383462000440&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Riany, Y., Cuskelly, M., & Meredith, P. (2016). Cultural beliefs about autism in Indonesia. International Journal of Disability, Development and Education, 63(6), 623-640.
https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_ericEJ1119419&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
2015
Gilmore, L., Cuskelly, M. & Browning, M. (2015). Mastery motivation in children with intellectual disability: Is there evidence for a Down syndrome behavioural phenotype? International Journal of Disability, Development and Education, 62, 265-275.
Cuskelly, M., & Gilmore, L. (2015). Loneliness in individuals with intellectual disability. In J. Kowalski, A. Rokach & J. P. Cangemi (Eds.), Loneliness in life: Education, business, society (pp. 134-151). McGraw-Hill.
Mann, G., Cuskelly, M. & Moni, K. (2015). Choosing a school: parental decision-making when special schools are an option. Disability and Society, 30 9: 1413-1427. doi:10.1080/09687599.2015.1108182
Morgan, M., Moni, K.B., & Cuskelly, M. (2015). The development of research skills in young adults with intellectual disability in participatory research. International Journal of Disability, Development and Education, 62 (4), 438-457.
2014
Jobling, I., Cooper, K., Moni, K., Jobling, A. and Lloyd, J. (2014). An Olympic themed education resource for secondary school students with low literacy skill. Journal of Olympic Education, 2 04/2013 - 03/2014: 31-34.
Couzens, D. & Cuskelly, M. (2014). Cognitive strengths and weaknesses for informing educational practice. In R. Faragher and B. Clarke (Eds.), Educating learners with Down syndrome: Research, theory, and practice with children and adolescents (pp. 40-59). Abingdon, Oxon, U.K.: Routledge.
Cuskelly, M. & Gilmore, L. (2014). Motivation in children with intellectual disability. Research and Practice in Intellectual and Developmental Disability, 1, 51-59. doi: org/10/1080/23297018.2014.906051
Gilmore, L. & Cuskelly, M. (2014). Mastery motivation in children with Down syndrome: promoting and sustaining interest in learning. In R. Faragher and B. Clarke (Eds.), Educating learners with Down syndrome: Research, theory, and practice with children and adolescents (pp. 60-82). Abingdon, Oxon, U.K.: Routledge.
Gilmore, L & Cuskelly, M. (2014). Vulnerability to loneliness in people with intellectual disability: An explanatory model. Journal of Policy and Practice in Intellectual Disability, 11, (3), 192-199. Doi: 10.111/jppi12089
Mallardo, M., Cuskelly, M., White, P. & Jobling, A. (2014). Mental health problems in adults with Down syndrome and their association with life circumstances. Journal of Mental Health and Intellectual Disabilities, 7, 1-17. doi: 10.1080/19315864.2103.842622
Morgan, M., Cuskelly, M., & Moni, K.B. (2014). Unanticipated ethical issues in a participatory research project with individuals with intellectual disability. Disability and Society. 10.1080/09687599.2014.934440.
Wooderson, J., Cuskelly, M. & Meyer, K. (2014). A systematic review of interventions for improving the work performance of direct support staff. Research and Practice in Intellectual and Developmental Disabilities. http://dx.doi.org/10.1080/23297018.2014.941967
2013
Cuskelly, M. Gilmore, L., & Carroll, A. (2013). Self-regulation and mastery motivation in individuals with developmental disabilities: Barriers, supports and strategies. In K.C. Barrett, N.A. Fox, G.A. Morgan, D. Fidler & L. Daunhauer (Eds), Handbook of self-regulatory processes in development: New directions and international perspectives. pp. 381-404 New York: Routledge.
Cuskelly, M. & King, G. (2013). Know the child: learning styles and engagement strategies. In J. Ziviani, A. Poulsen, & M. Cuskelly (Eds.). The art and science of motivation: A therapist’s guide to working with children (pp. 193-223). London, UK: Jessica Kingsley.
Cuskelly, M. & Poulsen, A. (2013). Children’s understanding of purpose: A matter of choice. In J. Ziviani, A. Poulsen, & M. Cuskelly (Eds.). The art and science of motivation: A therapist’s guide to working with children (pp. 59-89). London, UK: Jessica Kingsley.
Poulsen, A., Ziviani, J. & Cuskelly, M. (2013). Understanding Motivation in the Context of Engaging Children in Therapy. In J. Ziviani, A. Poulsen, & M. Cuskelly (Eds.). The art and science of motivation: A therapist’s guide to working with children (pp. 23-57). London, UK: Jessica Kingsley.
Ziviani, J. Poulsen, A. & Cuskelly, M. (Eds.) (2013). The art and science of motivation: A therapist’s guide to working with children. London, UK: Jessica Kingsley.
Morgan, M.F., Moni, K.B. & Cuskelly, M. (2013). Literacy strategies used by adults with an intellectual disability in negotiating their everyday community environments. Australian Journal of Adult Learning, 53 (3), 411-435.
2012
Couzens, D., Haynes, M. & Cuskelly, M. (2012) Individual and environmental characteristics associated with cognitive development in Down syndrome: A longitudinal study. Journal of Applied Research in Intellectual Disabilities, 25, 396-413.
Couzens, D. & Cuskelly, M. (2012). A longitudinal analysis of the prevalence and course of behaviour problems within a cohort with Down syndrome. In: A World of Potential. 2012 IASSIDD World Congress, Halifax, Nova Scotia, Canada, (681-681). 9-14 July 2012.
Cuskelly, M., Gilmore, L. & White, S. (2012). Contributors to life satisfaction in parents of an adult child with Down syndrome. In: A World of Potential. 2012 IASSIDD World Congress, Halifax, Nova Scotia, Canada, (733-733). 9-14 July 2012.
Douglas, L. & Cuskelly, M. (2012). A focus group study of police officers' recognition of individuals with intellectual disability. Psychiatry Psychology and Law, 19 1: 35-44. https://search.library.uq.edu.au/primo-explore/fulldisplay?docid=TN_tayfranc10.1080/13218719.2010.543403&context=PC&vid=61UQ&search_scope=61UQ_All&tab=61uq_all&lang=en_US
Gilmore, L. & Cuskelly, M. (2012). Parenting satisfaction and self-efficacy in mothers of children with Down syndrome: Early childhood to adolescence. Journal of Family Studies, 18 (1), 28-35.
Gray, P., Edwards, D., O'Callaghan, M. & Cuskelly, M. (2012). Parenting stress in mothers of preterm infants during early infancy. Early Human Development, 88 (1), 45-49.
Lynn, L., Cuskelly, M., Gray, P. & O’Callaghan, M. (2012). Self-regulation in children born with extremely low birth weight at 2 years old: A comparison study. Infants and Young Children, 25 (2), 136-148.
Moni, K, Jobling, A. & Lloyd, J. (2012). Understanding young adults' and family goals for post school literacy education. In: A World of Potential. 2012 IASSIDD World Congress, Halifax, Nova Scotia, Canada, (707-707). 9-14 July 2012.
Ziviani, J., Feeney, R.l, Cuskelly, M., Meredith, P. & Hunt, K. (2012). Effectiveness of support services for children and young people with challenging behaviours related to or secondary to disability, who are in out-of-home care: A systematic review. Children and Youth Services Review, 34 (4), 758-770.