School of Education

Dr Monica Cuskelly

Adjunct Associate Professor
School of Education
+61 7 336 56481
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Researcher biography

Down syndrome

Dr Cuskelly is the Director of the long running Down Syndrome Research Program based at The University of Queensland. In addition to her interests in the development of individuals with Down syndrome she has research interests in the psycho-social functioning of individuals with intellectual disability, family functioning in families with a child with a disability, and self-regulation and mastery motivation in vulnerable groups.

Publications

Books (5)
Book Chapters (19)
Journal Articles (131)
Conference Papers (34)
Department Technical Report (1)
Research Reports (2)

Books

Cuskelly, M. M., Brown, I.L., Shearer, J and Singh, B (2006). Families of Adults with Down Syndrome. 1 ed. Hampshire, UK: The Down Syndrome Educational Trust.
Stratford, B., Cuskelly, M. and Hayes, A. J. (2001). This May Be What You Want To Know About Down Syndrome (Chinese translation). Hong Kong: Hong Kong Down Syndrome Association.
Cuskelly, M. M. and Hayes, A. J. (1999). Parents' Guide to the Care of Their Child with Down Syndrome. Hong Kong: Hong Kong Down Syndrome Association.
Cuskelly, M. M. and Hayes, A. J. (1999). Brothers and Sisters of Children with Down Syndrome. Hong Kong: Hong Kong Down Syndrome Association.
Cuskelly, M. M. and Hayes, A. J. (1999). Families and Friends. Hong Kong: Hong Kong Down Syndrome Association.

Book Chapters

Meredith, Pamela and Cuskelly, Monica (2015). The centrality of relatedness to collaborative goal setting in therapy. Goal setting and motivation in therapy: engaging children and parents. (pp. 51-60) edited by Anne A. Poulsen, Jenny Ziviani and Monica Cuskelly. London, United Kingdom: Jessica Kingsley Publishers.
Poulsen, Anne A., Ziviani, Jenny and Cuskelly, Monica (2015). Competence: feeling confident and effective. Goal setting and motivation in therapy: engaging children and parents. (pp. 61-68) edited by Anne A. Poulsen, Jenny Ziviani and Monica Cuskelly. London, United Kingdom: Jessica Kingsley Publishers.
Cuskelly, Monica (2015). Reflections, caveats and guidelines. Goal setting and motivation in therapy: engaging children and parents. (pp. 220-231) edited by Anne A. Poulsen, Jenny Ziviani and Monica Cuskelly. London, United Kingdom: Jessica Kingsley Publishers.
Poulsen, Anne A., Ziviani, Jenny and Cuskelly, Monica (2015). The science of goal setting. Goal setting and motivation in therapy: engaging children and parents. (pp. 28-39) edited by Anne A. Poulsen, Jenny Ziviani and Monica Cuskelly. London, United Kingdom: Jessica Kingsley Publishers.
Gilmore, Linda and Cuskelly, Monica (2014). Mastery motivation in children with Down Syndrome: promoting and sustaining interest in learning. Educating Learners with Down Syndrome: Research, theory, and practice with children and adolescents. (pp. 60-82) edited by Rhonda Faragher and Barbara Clarke. Abingdon, Oxon, U.K.: Routledge.
Couzens, Donna and Cuskelly, Monica (2014). Cognitive strengths and weaknesses for informing educational practice. Educating Learners with Down Syndrome: Research, theory, and practice with children and adolescents. (pp. 40-59) edited by Rhonda Faragher and Barbara Clarke. Abingdon, Oxon, United Kingdom: Routledge.
Cuskelly, Monica and King, Gillian (2013). Know the child: maximising engagement and persistence in therapy. The art and science of motivation : a therapist's guide to working with children. (pp. 193-223) edited by Jenny Ziviani, Anne A. Poulsen and Monica Cuskelly. London United Kingdom: Jessica Kingsley Publishers.
Cuskelly, Monica and Poulsen, Anne A. (2013). Children's understanding of purpose: a matter of choice. The Art and science of motivation: a therapist's guide to working with children. (pp. 59-89) edited by Jenny Ziviani, Anne A. Poulsen and Monica Cuskelly. London, UK: Jessica Kingsley Publishers.
Cuskelly, Monica, Gilmore, Linda and Carroll, Annemaree (2013). Self-regulation and mastery motivation in individuals with developmental disabilities: Barriers, supports and strategies. Handbook of self-regulatory processes in development. (pp. 381-402) edited by Karen Caplovitz Barrett, Nathan A. Fox, George A. Morgan, Deborah J. Fidler and Lisa A. Daunhauer. New York, USA: Taylor and Francis.
Ziviani, Jenny, Poulsen, Anne A. and Cuskelly, Monica (2013). Understanding motivation in the context of engaging children in therapy. The art and science of motivation: a therapist's guide to working with children. (pp. 23-57) edited by Jenny Ziviani, Anne Poulsen and Monica Cuskelly. London, United Kingdom: Jessica Kingsley Publishers.
Rowbotham, Michelle, Cuskelly, Monica and Carroll, Annemaree (2013). Women caring for adults with intellectual disabilities. Disability and chronic disease. (pp. 121-142) edited by Joav Merrick, Shoshana Aspler and Mohammed Morad. Hauppauge, NY, United States: Nova Science Publishers.
Cuskelly, M., Chant, D., Hayes, A. and Jobling, A. (2010). Do behavioral problems in children with Down Syndrome suggest a phenotypic pattern?. Contemporary issues in intellectual disabilities. (pp. 113-118) edited by V. P. Prasher. New York , USA: Nova Science Publishers, Inc..
Cuskelly, M., Grace, R. and Hayes, A. (2009). Disability: Characteristics, contexts and consequences. Children, Families & Communities: Contexts and Consequences. (pp. 39-58) edited by J. Bowes and R. Grace. South Melbourne, Vic.: Oxford University Press Australia & New Zealand.
McBryde, C., Ziviani, J. M. and Cuskelly, M. M. (2006). The transition to school. Occupational Therapy with Children: Understanding Children's Occupations and Enabling Participation. (pp. 222-240) edited by S. Rodger and J. Ziviani. Carlton, VIC: Blackwell Publishing.
Cuskelly, M. M. (2005). Ethical inclusion of children with disabilities in research. Ethical Research with Children. (pp. 97-111) edited by A. Farrell. Berkshire, UK: Open University Press.
Cuskelly, M. M. and Hayes, A. (2004). Disability: Characteristics, contexts and consequences. Children, Families and Communities: Contexts and Consequences. (pp. 29-51) edited by Jennifer M. Bowes. Victoria Australia: Oxford University Press.
Jobling, M.A. and Cuskelly, M. (2002). Life styles of adults with Down syndrome living at home. Down Syndrome Across the Life Span. (pp. 109-120) edited by M. Cuskelly, A. Jobling and S. Buckley. London: Whurr. doi: 10.1002/9780470777886.ch9
Cuskelly, M., Jobling, M.A., Chant, D., Bower, A. and Hayes, A. (2002). Multiple perspectives of family life. Down Syndrome Across the Life Span. (pp. 159-173) edited by M. Cuskelly, A. Jobling and S. Buckley. London: Whurr. doi: 10.1002/9780470777886.ch13
Hayes, A. and Cuskelly, M. M. (1999). Disability: Characteristics, contexts and consequences. Children, families and communities: Contexts and consequences. (pp. 21-39) edited by Jennifer M. Bowes and Alan Hayes. South Melbourne: Oxford University Press.

Journal Articles

Gilmore, Linda and Cuskelly, Monica (2024). The Parenting Sense of Competence scale: updating a classic. Child: Care, Health and Development, 50 (1) e13173, 1-11. doi: 10.1111/cch.13173
Cuskelly, Monica, Moni, Karen, McMahon, Mary, Jobling, Anne and Lloyd, Jan (2024). Preparing adults with intellectual disabilities for their future: how do support services staff view their role?. Journal of Applied Research in Intellectual Disabilities, 37 (1) e13180, e13180. doi: 10.1111/jar.13180
Su, H., Cuskelly, M. and Gilmore, L. (2023). Factors related to parenting styles of Chinese mothers of children with and without intellectual disability. Journal of Intellectual Disability Research, 67 (6), 573-587. doi: 10.1111/jir.13029
Cuskelly, Monica (2022). Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas: reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021). Research and Practice in Intellectual and Developmental Disabilities, 9 (2) 2051114, 1-10. doi: 10.1080/23297018.2022.2051114
Lloyd, Janette, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2022). The National Disability Insurance Scheme: voices of adults with intellectual disabilities. Research and Practice in Intellectual and Developmental Disabilities, 9 (1), 1-9. doi: 10.1080/23297018.2021.2004382
Garrad, Traci-Ann, Rayner, Christopher, Pedersen, Scott and Cuskelly, Monica (2021). From research to reality: Australian evidence-based practice in autism education. Journal of Research in Special Educational Needs, 21 (4), 381-391. doi: 10.1111/1471-3802.12537
Mudwari, Nabaraj, Cuskelly, Monica, Murphy, Carol, Beasy, Kim and Aryal, Nirmal (2021). Impact of COVID-19 on refugee-background students during school shut down in Australia: A call for action. Teachers and Curriculum, 21 (1), 71-76. doi: 10.15663/tandc.v21i1.356
Mudwari, Nabaraj, Beasy, Kim, Murphy, Carol and Cuskelly, Monica (2021). Views of adolescent bhutanese refugees on home learning during school shutdown across the period of covid-19. Journal of Ethnic and Cultural Studies, 8 (4), 286-306. doi: 10.29333/ejecs/828
Lloyd, Janette, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2021). National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?. Disability and Society, 38 (1), 1-9. doi: 10.1080/09687599.2021.1907548
Su, Hui, Cuskelly, Monica, Gilmore, Linda and Sullivan, Karen (2021). Correction to: Perceptions of Support in Chinese Mothers of a Child with Intellectual Disability (Journal of Developmental and Physical Disabilities, (2018), 30, 4, (509-525), 10.1007/s10882-018-9599-8). Journal of Developmental and Physical Disabilities, 34 (3), 547-547. doi: 10.1007/s10882-021-09812-x
Opoku, Maxwell Peprah, Cuskelly, Monica, Pedersen, Scott J. and Rayner, Christopher S. (2021). Applying the theory of planned behaviour in assessments of teachers’ intentions towards practicing inclusive education: a scoping review. European Journal of Special Needs Education, 36 (4), 577-592. doi: 10.1080/08856257.2020.1779979
Lloyd, Jan, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2020). Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: parents’ perspectives. Journal of Intellectual and Developmental Disability, 46 (3), 1-10. doi: 10.3109/13668250.2020.1843764
Cuskelly, Monica, Moni, Karen, McMahon, Mary, Jobling, Anne, Lloyd, Jan and Leggatt-Cook, Chez (2020). Futures of adults with intellectual disability: staff expectations. Journal of Intellectual and Developmental Disability, 46 (4), 1-10. doi: 10.3109/13668250.2020.1814490
Lynn, Lisa N., Cuskelly, Monica and Gray, Peter H. (2020). Self-regulation in children born with extremely low birth weight at four years of age: a comparison study. Early Education and Development, 32 (8), 1-14. doi: 10.1080/10409289.2020.1810502
McMahon, Mary, Moni, Karen, Cuskelly, Monica, Lloyd, Jan and Jobling, Anne (2020). Aspirations held by young adults with intellectual disabilities and their mothers. Australian Journal of Career Development, 29 (2), 107-116. doi: 10.1177/1038416220916813
Cuskelly, Monica (2020). Parents and schools: commentary on “Identifying child, parent, and school correlates of stress among parents of children with intellectual and developmental disabilities” (Burke, Rios, & Aleman-Tovar, 2020). Research and Practice in Intellectual and Developmental Disabilities, 7 (1), 17-25. doi: 10.1080/23297018.2020.1727771
Opoku, Maxwell, Cuskelly, Monica, Rayner, Christopher and Pedersen, Scott (2020). The impact of teacher attributes on intentions to practice inclusive education in secondary schools in Ghana. International Journal of Disability, Development and Education, 69 (2), 1-17. doi: 10.1080/1034912x.2020.1731434
O’Brien, Zachariah K., Cuskelly, Monica and Slaughter, Virginia (2020). Social behaviors of children with ASD during play with siblings and parents: Parental perceptions. Research in Developmental Disabilities, 97 103525, 103525. doi: 10.1016/j.ridd.2019.103525
Opoku, Maxwell Peprah, Cuskelly, Monica, Pedersen, Scott J. and Rayner, Christopher S. (2020). Attitudes and self-efficacy as significant predictors of intention of secondary school teachers towards the implementation of inclusive education in Ghana. European Journal of Psychology of Education, 36 (3), 673-691. doi: 10.1007/s10212-020-00490-5
Lloyd, Jan, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2019). Engaging with National Disability Insurance Scheme planning: perspectives of parents of an adult with intellectual disability. Journal of Intellectual and Developmental Disability, 45 (3), 1-10. doi: 10.3109/13668250.2019.1654275
Opoku, Maxwell Peprah, Rayner, Christopher S., Pedersen, Scott J. and Cuskelly, Monica (2019). Mapping the evidence-based research on Ghana’s inclusive education to policy and practices: a scoping review. International Journal of Inclusive Education, 25 (10), 1-17. doi: 10.1080/13603116.2019.1600055
Cuskelly, Monica and Faragher, Rhonda (2019). Developmental dyscalculia and Down syndrome: indicative evidence. International Journal of Disability, Development and Education, 66 (2), 151-161. doi: 10.1080/1034912x.2019.1569209
Lloyd, Janette, Jobling, Anne, White, Emma Louise, Labosse, Michel, Moni, Karen, Cuskelly, Monica and McMahon, Mary (2019). A dialogic approach to working inclusively in a Research Reference Committee. British Journal of Learning Disabilities, 47 (1), 35-41. doi: 10.1111/bld.12253
Riany, Yulina Eva, Cuskelly, Monica and Meredith, Pamela (2018). Psychometric properties of parenting measures in Indonesia. Makara Human Behaviour Studies in Asia, 22 (2), 75-90. doi: 10.7454/hubs.asia.1160118
Riany, Yulina Eva, Cuskelly, Monica and Meredith, Pamela (2018). Parenting Style among Indonesian Parents of a Child with Autism Spectrum Disorder: Associations with Socio-Economic Status and Social Supports. Journal of Developmental and Physical Disabilities, 31 (3), 267-283. doi: 10.1007/s10882-018-9638-5
Mann, Glenys, Cuskelly, Monica and Moni, Karen (2018). An investigation of parents' decisions to transfer children from regular to special schools. Journal of Policy and Practice in Intellectual Disabilities, 15 (3), 183-192. doi: 10.1111/jppi.12238
Su, Hui, Cuskelly, Monica, Gilmore, Linda and Sullivan, Karen (2018). Perceptions of support in Chinese mothers of a child with intellectual disability. Journal of Developmental and Physical Disabilities, 30 (4), 509-525. doi: 10.1007/s10882-018-9599-8
Fernandez, Yolanda, Ziviani, Jenny, Cuskelly, Monica, Colquhoun, Rachael and Jones, Fiona (2018). Participation in community leisure programs: experiences and perspectives of children with developmental difficulties and their parents. Leisure Sciences, 40 (3), 110-130. doi: 10.1080/01490400.2017.1408509
Riany, Yulina Eva , Cuskelly, Monica and Meredith, Pamela (2017). Parenting style and parent–child relationship: a comparative study of Indonesian parents of children with and without Autism Spectrum Disorder (ASD). Journal of Child and Family Studies, 26 (12), 3559-3571. doi: 10.1007/s10826-017-0840-3
Wooderson, John R., Cuskelly, Monica and Meyer, Kim A. (2017). Evaluating the performance improvement preferences of disability service managers: An exploratory study using Gilbert's behavior engineering model. Journal of Applied Research in Intellectual Disabilities, 30 (4), 661-671. doi: 10.1111/jar.12260
Gilmore, Linda and Cuskelly, Monica (2017). Associations of child and adolescent mastery motivation and self-regulation with adult outcomes: a longitudinal study of individualswith down syndrome. American Journal On Intellectual and Developmental Disabilities, 122 (3), 235-246. doi: 10.1352/1944-7558-122.3.235
Su, Hui, Cuskelly, Monica, Gilmore, Linda and Sullivan, Karen (2017). Authoritative parenting of Chinese mothers of children with and without intellectual disability. Journal of Child and Family Studies, 26 (4), 1173-1183. doi: 10.1007/s10826-016-0628-x
Cuskelly, M., Gilmore, L., Glenn, S. and Jobling, A. (2016). Delay of gratification: a comparison study of children with Down syndrome, moderate intellectual disability and typical development. Journal of Intellectual Disability Research, 60 (9), 865-873. doi: 10.1111/jir.12262
Mann, Glenys, Moni, Karen and Cuskelly, Monica (2016). Parents’ views of an optimal school life: using Social Role Valorization to explore differences in parental perspectives when children have intellectual disability. International Journal of Qualitative Studies in Education, 29 (7), 1-16. doi: 10.1080/09518398.2016.1174893
Gilmore, Linda, Ryan, Belinda, Cuskelly, Monica and Gavidia-Payne, Susana (2016). Understanding maternal support for autonomy in young children with Down Syndrome. Journal of Policy and Practice in Intellectual Disabilities, 13 (2), 92-101. doi: 10.1111/jppi.12163
Cuskelly, Monica (2016). Contributors to adult sibling relationships and intention to care of siblings of individuals with Down Syndrome. Ajidd-American Journal On Intellectual and Developmental Disabilities, 121 (3), 204-218. doi: 10.1352/1944-7558-121.3.204
Cuskelly, Monica, Povey, Jenny and Jobling, Anne (2016). Trajectories of development of receptive vocabulary in individuals with Down syndrome. Journal of Policy and Practice in Intellectual Disabilities, 13 (2), 111-119. doi: 10.1111/jppi.12151
Riany, Yulina Eva, Cuskelly, Monica and Meredith, Pamela (2016). Cultural Beliefs about Autism in Indonesia. International Journal of Disability, Development and Education, 63 (6), 1-18. doi: 10.1080/1034912X.2016.1142069
Riany, Yulina Eva, Meredith, Pamela and Cuskelly, Monica (2016). Understanding the influence of traditional cultural values on Indonesian parenting. Marriage and Family Review, 53 (3), 1-20. doi: 10.1080/01494929.2016.1157561
Mann, Glenys, Cuskelly, Monica and Moni, Karen (2015). Choosing a school: parental decision-making when special schools are an option. Disability and Society, 30 (9), 1413-1427. doi: 10.1080/09687599.2015.1108182
Su, Hui, Cuskelly, Monica, Gilmore, Linda and Sullivan, Karen (2015). Examination of a scale assessing attitudes towards individuals with intellectual disability in china. International Journal of Disability, Development and Education, 62 (6), 660-675. doi: 10.1080/1034912X.2015.1077938
Cuskelly, Monica (2015). Commentary on 'Improving Policy and Practice: Adults with Intellectual Disabilities and their Families" (Fyffe, Pierce, Ilsey, & Paul, 2015). Research and Practice in Intellectual and Developmental Disabilities, 2 (1), 79-82. doi: 10.1080/23297018.2015.1021707
Morgan, Michelle F., Moni, Karen B. and Cuskelly, Monica (2015). The development of research skills in young adults with intellectual disability in participatory research. International Journal of Disability Development and Education, 62 (4), 438-457. doi: 10.1080/1034912X.2015.1028905
Gilmore, Linda, Cuskelly, Monica and Browning, Melissa (2015). Mastery Motivation in Children with Intellectual Disability: Is there Evidence for a Down Syndrome Behavioural Phenotype?. International Journal of Disability, Development and Education, 62 (3), 265-275. doi: 10.1080/1034912X.2015.1020923
Cuskelly, Monica, Morris, Michelle, Gilmore, Linda and Besley, Tracey (2015). Parents' reported use and views of strategies for managing the behaviour of their preschool child. Australasian Journal of Early Childhood, 40 (2), 89-98.
Cuskelly, Monica (2015). Review of Measures for children with developmental disabilities: an ICF-CY approach, edited by Annette Majnemer, 2012, London, MacKeith Press, 515 pp. + index of tests and subject index, AUS$324.95 (hardback), ISBN 978-1-90-831645-5. International Journal of Disability, Development and Education, 62 (2), 244-245. doi: 10.1080/1034912X.2015.998445
Gilmore, Linda and Cuskelly, Monica (2014). Vulnerability to loneliness in people with intellectual disability: an explanatory model. Journal of Policy and Practice in Intellectual Disabilities, 11 (3), 192-199. doi: 10.1111/jppi.12089
Wooderson, John R., Cuskelly, Monica and Meyer, Kim. A. (2014). A systematic review of interventions for improving the work performance of direct support staff. Research and Practice in Intellectual and Developmental Disabilities, 1 (2), 160-173. doi: 10.1080/23297018.2014.941967
Morgan, Michelle F., Cuskelly, Monica and Moni, Karen B. (2014). Unanticipated ethical issues in a participatory research project with individuals with intellectual disability. Disability and Society, 29 (8), 1305-1318. doi: 10.1080/09687599.2014.934440
Cuskelly, Monica and Gilmore, Linda (2014). Motivation in children with intellectual disabilities. Research and Practice in Intellectual and Developmental Disabilities, 1 (1), 51-59. doi: 10.1080/23297018.2014.906051
Mallardo, Mariarosa, Cuskelly, Monica, White, Paul and Jobling, Anne (2014). Mental health problems in adults with Down Syndrome and their association with life circumstances. Journal of Mental Health Research in Intellectual Disabilities, 7 (3), 229-245. doi: 10.1080/19315864.2013.842622
Hunter, Lisa, Abbott, Rebecca, Macdonald, Doune, Ziviani, Jennifer and Cuskelly, Monica (2014). Active kids, active minds: a physical activity intervention to promote learning?. Asia-Pacific Journal of Health, Sport and Physical Education, 5 (2), 117-131. doi: 10.1080/18377122.2014.906057
Morgan, Michelle F., Moni, Karen B. and Cuskelly, Monica (2013). Literacy strategies used by adults with intellectual disability in negotiating their everyday community environments. Australian Journal of Adult Learning, 53 (3), 411-435.
Gray, Peter H., Edwards, Dawn M., O'Callaghan, Michael J., Cuskelly, Monica and Gibbons, Kristen (2013). Parenting stress in mothers of very preterm infants: influence of development, temperament and maternal depression. Early Human Development, 89 (9), 625-629. doi: 10.1016/j.earlhumdev.2013.04.005
Law, P. C., Cuskelly, M. and Carroll, A. (2013). Young people's perceptions of family, peer, and school connectedness and their impact on adjustment. Australian Journal of Guidance and Counselling, 23 (1), 115-140. doi: 10.1017/jgc.2012.19
Cuskelly, Monica, Moni, Karen, Lloyd, Jan and Jobling, Anne (2013). Reliability of a method for establishing the capacity of individuals with an intellectual disability to respond to Likert scales. Journal of Intellectual and Developmental Disability, 38 (4), 318-324. doi: 10.3109/13668250.2013.832734
Perez, Micah, Carlson, Glenys, Ziviani, Jenny and Cuskelly, Monica (2012). Contribution of occupational therapists in positive behaviour support. Australian Occupational Therapy Journal, 59 (6), 428-436. doi: 10.1111/j.1440-1630.2012.01036.x
Couzens, Donna, Haynes, Michele and Cuskelly, Monica (2012). Individual and environmental characteristics associated with cognitive development in Down syndrome: a longitudinal study. Journal of Applied Research in Intellectual Disabilities, 25 (5), 396-413. doi: 10.1111/j.1468-3148.2011.00673.x
Gilmore, Linda and Cuskelly, Monica (2012). Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome. Journal of Family Studies, 18 (1), 28-35. doi: 10.5172/jfs.2012.18.1.28
Lynn, Lisa N., Cuskelly, Monica, Gray, Peter H. and O’Callaghan, Michael J. (2012). Self-regulation in children born with extremely low birth weight at 2 years old: A comparison study. Infants and Young Children, 25 (2), 136-148. doi: 10.1097/IYC.0b013e31824963a2
Ziviani, Jenny, Feeney, Rachel, Cuskelly, Monica, Meredith, Pamela and Hunt, Kathryn (2012). Effectiveness of support services for children and young people with challenging behaviours related to or secondary to disability, who are in out-of-home care: A systematic review. Children and Youth Services Review, 34 (4), 758-770. doi: 10.1016/j.childyouth.2012.01.002
Douglas, Lyn and Cuskelly, Monica (2012). A focus group study of police officers' recognition of individuals with intellectual disability. Psychiatry Psychology and Law, 19 (1), 35-44. doi: 10.1080/13218719.2010.543403
Gray, Peter H., Edwards, Dawn M., O'Callaghan, Michael J. and Cuskelly, Monica (2012). Parenting stress in mothers of preterm infants during early infancy. Early Human Development, 88 (1), 45-49. doi: 10.1016/j.earlhumdev.2011.06.014
Rowbotham, Michelle, Carroll, Annemaree and Cuskelly, Monica (2011). Mothers’ and fathers’ roles in caring for an adult child with an intellectual disability. International Journal of Disability, Development and Education, 58 (3), 223-240. doi: 10.1080/1034912X.2011.598396
Rowbotham, Michelle, Cuskelly, Monica and Carroll, Annemaree (2011). Long-term care-giving: A short-term longitudinal examination of the experiences of women caring for adults with intellectual disabilities. Journal of Alternative Medicine Research, 3 (1), 73-90.
Couzens, Donna, Cuskelly, Monica and Haynes, Michele A. (2011). Cognitive development and down syndrome: Age-related change on the Stanford-Binet test (Fourth Edition). American Journal on Intellectual and Developmental Disabilities, 116 (3), 181-204. doi: 10.1352/1944-7558-116.3.181
Rowbotham, Michelle, Cuskelly, Monica and Carroll, Annemaree (2011). Sustainable caregiving? Demands upon and resources of female carers of adults with intellectual disability. Journal of Women and Aging, 23 (2), 129-148. doi: 10.1080/08952841.2011.561141
Gilmore, Linda and Cuskelly, Monica (2011). Observational assessment and maternal reports of motivation in children and adolescents with Down Syndrome. American Journal on Intellectual and Developmental Disabilities, 116 (2), 153-164. doi: 10.1352/1944-7558-116.2.153
Morgan, Michelle F., Cuskelly, Monica and Moni, Karen B. (2011). Broadening the conceptualization of literacy in the lives of adults with intellectual disability. Research and Practice for Persons with Severe Disabilities, 36 (3-4), 112-120. doi: 10.2511/027494811800824516
Cuskelly, Monica and Gordon, Kellie (2011). Social comparisons: Associations with psychosocial functioning in individuals with Down syndrome. Down Syndrome Quarterly, 13 (1), 20-28.
Lynn, Lisa N., Cuskelly, Monica, O'Callaghan, Michael J. and Gray, Peter H. (2011). Self-regulation: A new perspective on learning problems experienced by children born extremely preterm. Australian Journal of Educational and Developmental Psychology, 11, 1-10.
Khadye, Medha, Ziviani, Jenny and Cuskelly, Monica (2011). Measures of parent satisfaction with early intervention services for children with physical disabilities: A systematic review.. Journal of Occupational Therapy, Schools and Early Intervention, 4 (3-4), 247-259. doi: 10.1080/19411243.2011.632263
Ziviani, Jenny, Cuskelly, Monica and Feeney, Rachel (2010). Parent satisfaction with early intervention services for children with physical disabilities: Internal consistency of the European Parent Satisfaction Scale about Early Intervention. Infants and Young Children, 23 (3), 184-194. doi: 10.1097/IYC.0b013e3181e32a28
Cuskelly, Monica (2009). Readers' Responsibilities. International Journal of Disability Development and Education, 56 (1), 1-3. doi: 10.1080/10349120802681556
Cuskelly, M., Hauser-Cram, P. and Van Riper, M. (2009). Families of children with Down syndrome: What we know and what we need to know. Down Syndrome Research and Practice, 12 (3), 202-210.
Gilmore, L. and Cuskelly, M. (2009). A longitudinal study of motivation and competence in children with Down syndrome: Early childhood to early adolescence. Journal of Intellectual Disability Research, 53 (5), 484-492. doi: 10.1111/j.1365-2788.2009.01166.x
Gilmore, L. and Cuskelly, M. (2009). Factor structure of the parenting sense of competence scale using a normative sample. Child Care Health and Development, 35 (1), 48-55. doi: 10.1111/j.1365-2214.2008.00867.x
Gilmore, Linda, Cuskelly, Monica, Jobling, Anne and Hayes, Alan (2009). Maternal support for autonomy: Relationships with persistence for children with Down syndrome and typically developing children. Research in Developmental Disabilities, 30 (5), 1023-1033. doi: 10.1016/j.ridd.2009.02.005
Cuskelly, Monica (2008). A lasting legacy. International Journal of Disability Development and Education, 55 (4), 287-288. doi: 10.1080/10349120802489430
Gordon, Megan, Cuskelly, Monica and Rosenman, Linda (2008). Influences on mothers' employment when children have disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5 (3), 203-210. doi: 10.1111/j.1741-1130.2008.00174.x
Poulsen, Anne A., Ziviani, Jenny M., Johnson, Helen and Cuskelly, Monica (2008). Loneliness and life satisfaction of boys with Developmental Coordination Disorder: The impact of leisure participation and perceived freedom in leisure. Human Movement Science, 27 (2), 325-343. doi: 10.1016/j.humov.2008.02.004
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2008). Leisure Time Physical Activity Energy Expenditure in Boys with Developmental Coordination Disorder: The Role of Peer Relations Self-Concept Perceptions. OTJR: Occupation, Participation and Health, 28 (1), 30-39. doi: 10.3928/15394492-20080101-05
Poulsen, Anne A., Ziviani, Jenny M., Cuskelly, Monica and Smith, Rachel (2007). Boys with developmental coordination disorder: Loneliness and team sport participation. American Journal of Occupational Therapy, 61 (4), 463-474. doi: 10.5014/ajot.61.4.451
Gordon, M., Rosenman, L. S. and Cuskelly, M. M. (2007). Constrained labour: Maternal employment when children have disabilities. Journal of Applied Research In Intellectual Disabilities, 20 (3), 236-246. doi: 10.1111/j.1468-3148.2006.00325.x
Cuskelly, M. and Gilmore, L. (2007). Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms. Journal of Intellectual & Developmental Disability, 32 (3), 214-221. doi: 10.1080/13668250701549450
Cuskelly, M. M. and Stubbins, P. (2007). Self-imposed delay of gratification in adolescents with Down Syndrome. Journal on Developmental Disabilities, 12 (1-Supplement 2), 19-28.
Keen, D., Brannigan, K. L. and Cuskelly, M. (2007). Toilet training for children with autism: The effects of video modeling. Journal of Developmental and Physical Disabilities, 19 (4), 291-303. doi: 10.1007/s10882-007-9044-x
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2007). Perceived freedom in leisure and physical co-ordination ability: impact on out-of-school activity participation and life satisfaction. Child: Care, Health and Development, 33 (4), 432-440. doi: 10.1111/j.1365-2214.2007.00730.x
Ross, Penelope and Cuskelly, Monica (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorders. Journal of Intellectual and Developmental Disability, 31 (2), 77-86. doi: 10.1080/13668250600710864
Jobling, M A, Cuskelly, M M and Rutherford, J. (2006). Physical activity, food intake and television habits of young adults with Down syndrome and their siblings. ACHPER Healthy Lifestyles Journal, 53 (3-4), 24-30.
McCarthy, Annette, Cuskelly, Monica, van Kraayenoord, Christina E. and Cohen, Jonathan (2006). Predictors of stress in mothers and fathers of children with Fragile-X syndrome. Research in Developmental Disabilities, 27 (6), 688-704. doi: 10.1016/j.ridd.2005.10.002
Cuskelly, M. and Gunn, P. (2006). Adjustment of chldren who have a sibling with Down syndrome: perspectives of mothers, fathers and children. Journal of Intellectual Disability Research, 50 (12), 917-925. doi: 10.1111/j.1365-2788.2006.00922.x
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2006). General self-concept and life satisfaction for boys with differing levels of physical coordination: The role of goal orientations and leisure participation. Human Movement Science, 25 (6), 839-860. doi: 10.1016/j.humov.2006.05.003
Jobling, M A and Cuskelly, M M (2006). Young people with Down syndrome: A preliminary investigation of health knowledge and associated behaviours. Journal of Intellectual and Developmental Disability, 31 (4), 210-218. doi: 10.1080/13668250600999186
Cuskelly, M. M., Jobling, M. A., Gilmore, L. and Glenn, S. (2006). Parental strategies for assisting children to wait. Down Syndrome Research and Practice, 11 (2), 55-63. doi: 10.3104/reports.315
Cuskelly, M. M. (2006). Parents of adults with an intellectual disability. Family Matters (74), 20-25.
Hay, I. and Cuskelly, M. M. (2006). School counsellors and young people in care. Australian Journal of Guidance & Counselling, 16 (1), 106-118. doi: 10.1375/ajgc.16.1.106
Yang, Lizhu, Wang, Jiangyang, Liu, Wen, Cuskelly, Monica and Zhang,, Airong (2005). Strategies Used by 3 to 5 Years Old Children on a Self-imposed Delay of Gratification Task Including a Cross-cultural Comparison Between China and Australia. Acta Psychologica Sinica, 37 (2), 224-232.
Cuskelly, M. M., Hay, I., Winchcomb, M., Cervetto, K. T., Walker, J. M. and Chu, J. C. (2005). A preliminary investigation of parenting attributes of Australian foster carers. The Australian Educational and Developmental Psychologist, 22 (2), 65-83. doi: 10.1017/S0816512200028765
Cuskelly, Monica (2005). Caveat emptor!. International Journal of Disability, Development and Education, 52 (4), 271-273. doi: 10.1080/10349120500348607
Cuskelly, Monica (2004). Research in the public interest: working for children with disabilities. International Journal of Disability, Development and Education,, 51 (3), 227-229. doi: 10.1080/1034912042000259206
Cuskelly, Monica (2004). The evolving construct of intellectual disability: is everything old new again?. International Journal of Disability, Development and Education, 51 (1), 117-122. doi: 10.1080/1034912042000182238
Mcbryde, C., Ziviani, J. M. and Cuskelly, M. M. (2004). School readiness and factors that influence decision making. Occupational Therapy International, 11 (4), 193-208. doi: 10.1002/oti.211
Cuskelly, M. and Bryde, R. (2004). Attitudes towards the sexuality of adults with an intellectual disability: parents, support staff, and a community sample. Journal of Intellectual & Developmental Disability, 29 (3), 255-264. doi: 10.1080/13668250412331285136
Couzens, Donna, Cuskelly, Monica and Jobling, Anne (2004). The Stanford Binet fourth edition and its use with individuals with Down syndrome: Cautions for clinicians. International Journal of Disability, Development and Education, 51 (1), 39-56. doi: 10.1080/1034912042000182193
Cuskelly, Monica, Zhang, Airong and Hayes, Alan (2003). A mental age matched comparison study of delay of gratification in children with Down syndrome. International Journal of Disability, Development and Education, 50 (3), 239-251. doi: 10.1080/1034912032000120435
Cuskelly, Monica and Gunn, Pat (2003). Sibling relationships of children with Down syndrome: Perspectives of mothers, fathers and siblings. American Journal on Mental Retardation, 108 (4), 234-244. doi: 10.1352/0895-8017(2003)108<234:SROCWD>2.0.CO;2
Gilmore, Linda, Cuskelly, Monica and Hayes, Alan (2003). A comparative study of mastery motivation in young children with Down's syndrome: Similar outcome, different processes?. Journal of Intellectual Disability Research, 47 (3), 181-190. doi: 10.1046/j.1365-2788.2003.00460.x
McBryde, C., Ziviani, J. M. and Cuskelly, M. M. (2003). School readiness: An overview. Educating Young Children: Learning and Teaching in the Early Childhood Years, 9 (2), 22-24.
Gilmore, L., Cuskelly, M. M. and Purdie, N. (2003). Mastery motivation: Stability and predictive validity for ages two to eight. Early Education and Development, 14 (4), 411-424. doi: 10.1207/s15566935eed1404_2
Gilmore, L, Cuskelly, M and Hayes, A (2003). Self-regulatory behaviors in children with Down syndrome and typically developing children measured using the Goodman Lock Box. Research In Developmental Disabilities, 24 (2), 95-108. doi: 10.1016/S0891-4222(03)00012-X
Gilmore, L., Campbell, J. and Cuskelly, M. M. (2003). Development expectations, personality, stereotypes, and attitudes towards inclusive education: Community and teacher views of down sydrome. International Journal of Disability, Development and Education, 50 (1), 65-76. doi: 10.1080/1034912032000053340
Campbell, J, Gilmore, L and Cuskelly, M (2003). Changing student teachers' attitudes towards disability and inclusion. Journal of Intellectual & Developmental Disability, 28 (4), 369-379. doi: 10.1080/13668250310001616407
Cuskelly, M. M. and Detering, N. (2003). Teacher and student teacher perspectives of school readiness. Australian Journal of Early Childhood, 28 (2), 39-46. doi: 10.1177/183693910302800208
Einam, M and Cuskelly, M (2002). Paid employment of mothers and fathers of an adult child with multiple disabilities. Journal of Intellectual Disability Research, 46 (2), 158-167. doi: 10.1046/j.1365-2788.2002.00383.x
Cuskelly, M., Einam, M. and Jobling, A. (2001). Delay of gratification in young adults with Down syndrome. Down's syndrome, research and practice : the journal of the Sarah Duffen Centre / University of Portsmouth, 7 (2), 60-67. doi: 10.3104/reports.115
Gilmore, L., Cuskelly, M., Jobling, A. and Smith, S. (2001). Deletion of 8p: a report of a child with normal intelligence. Developmental Medicine And Child Neurology, 43 (12), 843-846. doi: 10.1017/S0012162201001530
Cuskelly, M. (2001). Education is about individuals. International Journal of Disability, Development and Education, 48 (3), 237-238.
Cuskelly, M., Einam, M. and Jobling, M. A. (2001). Delay of gratification in young adults with Down syndrome. Down Syndrome Research and Practice, 7 (2), 60-67.
Cuskelly, M. M. (2000). Social and educational inclusion. International Journal of Disability, Development and Education, 47 (1), 5-6.
Cuskelly, M. M. (2000). Challenges for service providers. International Journal of Disability, Development and Education, 47 (2), 117-118.
Cuskelly, M. M. and Harland, P. (2000). The responsibilities of adult siblings of adults with dual sensory impairments. International Journal of Disability, Development and Education, 47 (3), 293-307. doi: 10.1080/713671116
Cuskelly, M. M. (1999). Adjustment of siblings of children with a disability: Methodological issues. International Journal for the Advancement of Counselling, 21 (2), 111-124. doi: 10.1023/A:1005331700993
Cuskelly, M. M. (1999). An international focus. International Journal of Disability, Development and Education, 46 (4), 437-438.
M.Cuskelly M.CuskellyMonicaM.Cuskelly M.CuskellyMonicahttps://api.elsevier.com/content/author/author_id/6602768107 (1998). Parenting and employment decisions of parents with a preschool child with a disability. Journal of Intellectual & Developmental Disability, 23 (4), 319-332. doi: 10.1080/13668259800033801
Cuskelly M. and Gordon L. (1998). Educational psychology: Establishing a role. Australian Educational and Developmental Psychologist, 15 (2), 62-73. doi: 10.1017/S0816512200027942
Cuskelly, Monica, Zhang, Airong and Gilmore, Linda (1998). The Importance of Self-Regulation in Young Children With Down Syndrome. International Journal of Disability, Development and Education, 45 (3), 331-341. doi: 10.1080/1034912980450308
Atchison, JM and Cuskelly, MM (1994). Educating Teachers About Asthma. Journal of Asthma, 31 (4), 269-276. doi: 10.3109/02770909409089474
Cuskelly, M and Gunn, P (1993). Maternal Reports of Behavior of Siblings of Children with Down-Syndrome. American Journal On Mental Retardation, 97 (5), 521-529.
Cuskelly, M and Dadds, M (1992). Behavioral-Problems in Children with Downs-Syndrome and Their Siblings. Journal of Child Psychology and Psychiatry and Allied Disciplines, 33 (4), 749-761. doi: 10.1111/j.1469-7610.1992.tb00910.x
Gunn P. and Cuskelly M. (1991). Down Syndrome Temperament: The Stereotype at Middle Childhood and Adolescence. International Journal of Disability, Development and Education, 38 (1), 59-70. doi: 10.1080/0156655910380106

Conference Papers

Mann, G., Cuskelly, M. and Moni, K. (2018). The contribution that Social Role Valorisation can make to inclusive education reform. Fifth International IASSIDD Europe Congress, Athens, Greece, 17–20 July. Chichester, West Sussex, United Kingdom: Wiley-Blackwell Publishing. doi: 10.1111/jar.12484
Mann, G., Cuskelly, M. and Moni, K. (2016). An investigation of parents' decision to transfer their children from regular to special schools. HOBOKEN: WILEY-BLACKWELL.
Cuskelly, M., Povey, J. and Jobling, A. (2016). Receptive vocabulary development in individuals with Down syndrome. 2016 IASSIDD World Congress, Melbourne VIC Australia, 14-19 August 2016. HOBOKEN: WILEY-BLACKWELL.
Cuskelly, M., Moni, K. B., McMahon, M. and Lloyd, J. (2014). Support staff views of the futures of adults with intellectual disability. 4th International IASSIDD Europe Regional Congress, Vienna, 14-17 July 2014. Chichester, West Sussex, United Kingdom: Wiley-Blackwell Publishing. doi: 10.1111/jar.12105
Couzens, D.. and Cuskelly, M. (2012). A longitudinal analysis of the prevalence and course of behaviour problems within a cohort with Down syndrome. 2012 IASSIDWorld Congress, Halifax, Nova Scotia, Canada, 9-14 July 2012. Oxford, United Kingdom: Wiley-Blackwell Publishing. doi: 10.1111/j.1365-2788.2012.01583_4.x
Cuskelly, M., Gilmore, L. and White, S. (2012). Contributors to life satisfaction in parents of an adult child with Down syndrome. 2012 IASSIDWorld Congress, Halifax, Nova Scotia, Canada, 9-14 July 2012. Oxford, United Kingdom: Wiley-Blackwell Publishing. doi: 10.1111/j.1365-2788.2012.01583_4.x
Gilmore, Linda and Cuskelly, Monica (2009). Do children and adolescents with Down syndrome have deficits in motivation?. 2nd IASSID Asia-Pacific Regional Conference Singapore, Singapore, 24-27 June 2009. Hobokenn, NJ, U.S.A.: Wiley-Blackwell Publishing. doi: 10.1111/j.1741-1130.2009.00210.x
Cuskelly, Monica (2009). Challenging the myths and redressing the missteps in family research. 2nd International Association for the Scientific Study of Intellectual Disabilities (IASSID) Asia-Pacific Regional Conference, Singapore, 24-27 June 2009. Hoboken, NJ, United States: Wiley-Blackwell Publishing. doi: 10.1111/j.1741-1130.2009.00211.x
Cuskelly, M, Gilmore, L, Jobling, A and Glenn, S (2009). Strategy use of children with Down syndrome in a delay of gratification situation. 2nd IASSID Asia-Pacific Regional Conference, Singapore, 24-27 June 2009. Hoboken, NJ, United States: Wiley-Blackwell Publishing.
Poulsen, A. A., Ziviani, J. M., Johnson, H. and Cuskelly, M. (2008). Picked last or not at all: An added risk factor for boys with developmental coordination disorder. OT Australia 23rd National Conference and Exhibition, Melbourne, Australia, 11-13 September, 2008.
Gilmore, L., Cuskelly, M., Jobling, A., Glenn, S. and Martin, V. (2008). Child characteristics associated with delay of gratification in children with Down syndrome. IASSID 13th World Congress, Cape Town, South Africa, 15-30 August 2008. Oxford, England, U. K.: Wiley-Blackwell Publishing Ltd.. doi: 10.1111/j.1365-2788.2008.01086.x
Poulsen, A., Ziviani, J. and Cuskelly, M. (2007). Sports participation of Australian boys with Developmental Coordination Disorder. Embracing cultural diversity through innovative practice. 4th Asia-Pacific Occupational Therapy Congress (APOTC'07), Hong Kong, 23-26 June 2007. Hong Kong: Hong Kong OT Association.
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2007). Loneliness: Leisure participation, perceived freedom in leisure and life satisfaction of boys with DCD. 7th International Conference on Children with Developmental Coordination Disorder, Melbourne, Victoria, Australia, 6-9 February 2007.
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2006). Loneliness, life satisfaction and general self-concept of boys with develomental coordination disorder. School of Health & Rehabilitation Sciences Postgraduate Research Day, Brisbane, Australia, 12 December 2006.
Poulsen, Anne, Ziviani, Jenny and Cuskelly, Monica (2006). Boys with developmental coordination disorder: Loneliness and perceived freedom in leisure. 14th Congress of the World Federation of Occupational Therapists (WFOT 2006): OTs in Action: Local and Global, Sydney, Australia, 23-28 July 2006.
Hay, I. and Cuskelly, M. M. (2005). Children and youth in foster care: A multidimensional issue for educators. Cognition, Language and Special Education Research Conference, Surfers Paradise, QLD., 2-4 December 2005. Brisbane, QLD: Griffith University.
Gilmore, L. and Cuskelly, M. M. (2005). The measurement of self-regulation from ages 2 to 8. Past Reflections, Future Directions, Melbourne, VIC, 28 September - 2 October 2005. Melbourne: The Australian Psychological Society.
Cuskelly, M, Yang, LZ, Jobling, A, Liu, W and Zhang, A (2004). A cross-cultural examination of the development of self-imposed delay of gratification. HOVE: PSYCHOLOGY PRESS.
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2004). Loneliness of boys with developmental coordination disorder. 8th State Conference OT Australia, "Making Waves", Twin Waters, Queensland, 17-18 September 2004.
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. M. (2003). Childrens Adaptive Time Use: Engagement in Healthy Leisure Behaviours. Leading Changes, Melbourne, 6-9 April 2003. Melbourne: OT Australia.
Poulsen, A. A., Ziviani, J. M. and Cuskelly, M. (2002). I like to count my money: Personal projects and life satisfaction of pre-adolescent boys. OT Australia: QLD 7th State Conference, Townsville, Qld., Australia, 20-21 September 2002.
Way, R. L., Cuskelly, M. and Hayes, A. J. (2001). Families' connections to their community: Barriers and opportunities. Fourth European Down Syndrome Conference, Malta, 10th - 13th March, 1999. Portsmouth, UK: Down Syndrome Educational Trust.
Cuskelly, M. M. (2001). Relationships between children with Down syndrome and their brothers and sisters. Fourth European Down Syndrome Conference, Malta, 10th - 13th March, 1999. Portsmouth, UK: Down Syndrome Educational Trust.
Jobling, M. A. and Cuskelly, M. (2001). Fit for an active life: Health knowledge and behavior of adolescents with Down syndrome. 13th International Symposium Adapted Physical Activity, Vienna, 3-7 July, 2001. Vienna: Austrian Federation of Adapted Physical Activity.
Anne A Poulsen, Ziviani, Jenny M. and Cuskelly, Monica M. (2001). Leisure-time experiences of preadolescent boys with developmental coordination disorder. School of Health & Rehabilitation Sciences Postgraduate Research Day, University of Queensland, Brisbane, 2001. University of Queensland, St Lucia:
Cuskelly, M., Chant, D. C., Hayes, A. and Jobling, M.A. (2001). Behaviour problems in children with Down syndrome: Associations with parental stress. 36th Annual Conference of ASSID, Melbourne, 12-15 November 2001. Melbourne: Aust Society for the Study of Intellectual Disability.
McBryde, C., Ziviani, J. M., Cuskelly, M. and Bahr, M.P. (2001). Factors influencing parent and preschool teacher perceptions of a child's readiness for, and adjustment to, school. OT Australia 21st National Conference, Sheraton, Brisbane, 1-4 April, 2001. Brisbane: OT Australia.
Zhang, A., Cuskelly, M. M. and Hayes, A. (2000). Delay of gratification in young children with Down syndrome. 7th World Down Syndrome Congress, Sydney, 23-26 March 2000. Sydney: Down Syndrome Association of NSW.
Jobling, A. M. A. and Cuskelly, M. M. (2000). Knowing and doing: Health knowledge and behaviours of adolescents with Down syndrome. 7th World Down Syndrome Congress, Sydney, 23-26 March 2000. Sydney: Down Syndrome Association of NSW.
Cuskelly, M. M. and Gunn, V. P. (2000). What contributes to good relationships between siblings?. 7th World Down Syndrome Congress, Sydney, 23-26 March 2000. Sydney: Down Syndrome Association of NSW.
Cuskelly, M. M. and Jobling, A. M. A. (2000). Delay of gratification in young adults with Down syndrome. 7th World Down Syndrome Congress, Sydney, 23-26 March 2000. Sydney: Down Syndrome Association of NSW.
Jobling, A. M. A. and Cuskelly, M. M. (2000). This is my life: A picture of the life of adults with Down syndrome in Queensland. 7th World Down Syndrome Congress, Sydney, 23-26 March 2000. Sydney: Down Syndrome Association of NSW.
Hayes, A. J., Cuskelly, M. M. and Chant, D. (2000). Sources of strength in families with a child with Down syndrome. 7th World Down Syndrome Congress, Sydney, 23-26 March 2000. Sydney: Down Syndrome Association of NSW.
McBryde, C. L., Cuskelly, M. M. and Ziviani, J. M. (2000). Ready for school in the 21st century?. OT Australia - Qld 6th State Conference, Toowoomba, 7-8 April 2000. Melbourne: OT Australia.

Department Technical Report

Macdonald, Doune, Abbott, Rebecca, Ziviani, Jenny, Lisa Hunter, Cuskelly, Monica, Tinning, Richard and Najman, Jake (2009). Active Kids Active Minds (AKAM). Report for the Department of Education, Training and the Arts. Phase 1, Report 2. Schools of Human Movement Studies, Health and Rehabilitation Sciences, Education, and Social Science, The University of Queensland.

Research Reports

Ziviani, J., Feeney, R., Cuskelly, M., Darlington, Y., Head, B., Meredith, P. and Khan, A. (2012). Evaluation of Evolve Behaviour Support Services: Final Report to Department of Communities (Disability and Community Care Services). Brisbane, Australia:
Ziviani, J., Feeney, R., Rodger, S., Watter, P., Brown, R., Head, B., Cuskelly, M. and Darlington, Y. (2011). Primary research on early intervention services for children with a physical disability: Final Report to Department of Communities (Disability and Community Care Services). Brisbane, Australia: Department of Communities (Disability and Community Care Services).